For Research Participants
OHRP Launches Public Outreach Website
OHRP has announced the launch of its new public outreach website: About Research Participation. These resources are designed to help potential volunteers better understand research and find the information they need to decide whether to participate in research.
- A series of short videos about participating in research:
- A printable list of questions that potential volunteers can ask researchers
- Links to additional resources
- All materials above are also available in Spanish: Ver en Español
OHRP Luminaries Lecture Series: A series of guest lectures on a wide range of research topics for the research community. A sampling of topics includes eConsent, HIPAA, FDA, community research, personalized medicine, research ethics, big data, genetics and Belmont Report 25th anniversary video series.
UNC Brochure on Participating in Clinical Research
The University of North Carolina at Chapel Hill has developed a brochure titled “Should You Volunteer?” to educate the public about medical research in general, and help them decide if they might want to participate. You may download a PDF version of the brochure (in English or Spanish):
- Should You Volunteer? Participating in medical research at the University of North Carolina at Chapel Hill (English)
- Deberías Ser Voluntario? Participación en la investigación médica de la Universidad de Carolina del Norte en Chapel Hill (Español)
The following links to web sites developed by the National Institutes of Health and the National Cancer Institute also provide information for individuals who are interested in participating in a clinical trial.
- Clinical Research Trials and You Sponsored by the National Institutes of Health (NIH)
- clinicaltrials.gov: Listing of clinical trials sponsored by the NIH
- An Introduction to Clinical Trials: Sponsored by NIH
- Learning about Clinical Trials: Sponsored by the National Cancer Institute/NIH
- NCI: Should You Join a Clinical Trial? (2:07)
- The Clinical Trial Journey (2:46)
- Understanding Clinical Trials (6:58)
- Ensayos clinicos: Información de los NIH
If you are a participant in a study at the University of North Carolina at Chapel Hill and have questions or concerns about your rights as a research subject you may contact, anonymously if you wish, the Office of Human Research Ethics by calling (919) 966-3113 or by email: IRB Subjects. Routine questions about scheduling, explanation of procedures, or similar matters about your particular study should be addressed to the research investigator named in your consent form.